25 and Counting

Making the Low Go… May 13, 2010

Filed under: BG numbers,Uncategorized — Emilie @ 11:53 pm

I’m a few days behind, but want to try to keep up with Diabetes Blog Week.  Day Two’s topic is “Making the Low Go”.  I have vivid memories of the first orange juice I used to drink when I was low.  Specifically, I remember the night when my mom went into labor with my brother and sister.  My father sat me down in the waiting room, put two of these Donald Duck OJ’s in front of me and said “Drink this if you feel shaky.”  I spent the next few hours entertaining an elderly couple by doing cartwheels…

 

After Donald Duck OJ, I think I moved on to other things like BD Glucose Tablets and that horrible gel that I cannot remember the name of. I feel like it came in a foil-like tube. The standard was always OJ at home.

Fast forward to present day and I think somewhere around the introduction of carb counting (a.k.a. you can eat what you want as long as you bolus appropriately for it) all reason went out the door. Things also seemed to get worse when I got married and my husband introduced all sorts of things in our house that I avoided buying at the grocery stores because my will power is zilch.  So surrounded by seasonal goodies (chocolate easter egg things, girl scout cookies, etc.) things get dicey for me.  It seems I have no problem getting my numbers up, it’s just keeping them from sky rocketing the opposite direction. 

Case in point.  A few nights ago I wake up feeling not right.  I decided if I felt low then I best start treating asap, so attempting to be responsible I grabbed the costco sized glucose tabs container on my nightstand (favorite flavor is tropical fruit!).  I down 4, sit back and try to wait for things to go back to normal.  I still feel lowish about 10 min later so I test and am 58.  At that point, I panic and head to the kitchen.  Things never go well if I head to the kitchen in the middle of the night.  Still trying to be responsible, I drink a juice box.  Five minutes later the red velvet cupcakes I had made with my daughter are staring at me.  I am still in panic mode, so I eat one.  I bolus for the cupcake, but still wake up at 265.

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A day in the life… May 10, 2010

Filed under: Uncategorized — Emilie @ 9:00 am

Thanks to Karen for organizing Diabetes Blog Week!  I am more of a lurker, but am using Karen’s daily suggestions as a way to hopefully get myself into some sort of routine that will hopefully inspire me to post more often. 

So…a day in the life.  This is a hard one, since I tend to keep the minute by minute of diabetes in the back of my head.  How do I do this, seeing as diabetes is a 24/7 constant in our lives?  I’m not really sure, I think I stay pretty distracted with work, child, hubby, etc.  Here’s a sampling of my day:

7:00 a.m. – my daughter scampers in our room, usually climbs into bed.  If I’m lucky she goes to sleep.  If I’m not, the questions begin – “Mommy, can I wear a dress today?  Mommy, is today to- day at school?  Mommy is it tomorrow?”  My brain turns into mush immediately.  Today was a question day and I got showered and dressed with her at my feet.  I left pump and sensor receiver in bed so I could roam around free for a few minutes.  Daughter brings pump and receiver to me after I am done showering – “Daddy said to bring them to you.  One is beeping.”  Pump alarmed because no buttons had been pushed in 11 hours…. 

7:45 a.m. – we are all dressed, and in the kitchen.  I manage to test, and calibrate my dexcom.  129, not bad.  For some reason, my fasting numbers are a crap shoot in the mornings.  I just never know what I am going to get.  While lifting child onto the counter so she can “help” me make whatever we have decided to eat for breakfast.  Bolus, sit all of our food on the table.  Lift food to my mouth to be interrupted by a request for a different spoon.   Attempt to eat what I’ve bolused for, before I run out the door. 

8:00 a.m. – Run out the door, commute commences.  I am lucky and find a seat on the metro, I pull out my dexcom and see what breakfast is doing.  Dexcom doesn’t seem to know, it says ???. 

9:00 a.m. – walk into work, find coffee asap.  Day at work commences.  Dex comes back to life and starts beeping.  I pull it out.  It says 221.  Meter says 295.  Fabulous.  Bolus, try to concentrate despite the fact that I can feel the nausea and thirst coming. 

12:30 p.m. – I notice I am hungry.  Pull out the meter, test.  dammit, I am still 198.  Where did that bolus go?  More insulin.

1:30 p.m. – Finally I am heading south and feeling like I can eat.  A turkey sandwich from Quizno’s on wheat bread.  I guesstimate 60 grams of carbs, and bolus accordingly.

2:40 p.m. – Check of the dex reveals I guessed somewhere right.  Dex leaves me alone for a few hours. 

4:45 p.m. – Check BG before getting on metro.  You just never know what may happen on the metro these days, so I prefer to fix any issues before I get on it.  I am 96 and holding steady on the Dexcom.  I try not to be too surprised. 

5:30 p.m. – I start feeling that warm tingling familiar feeling.  I pull out dex which says I am flat lined at 96.  Pull out my meter which says 66.  4 glucose tabs.  Why does my dex fail sometimes?  Really frustrated, given my past hypoglycemia unawareness issues.   

6:00 p.m. – I am home.  Go meet daughter on the playground, catch up on her day and socialize with the neighbors.

6:30 p.m. – Hubby walks in.  We discuss what to eat for dinner.  Conclude the house is bare from it being the end of the week, and we all walk to Cal Tor.  My daughter has requested a fourth meal, and eats an entire quesadilla.  I get a salad, but snack on some chips too.  I guesstimate 50 carbs, you never know with all the corn and beans in these salads…

8:00 p.m. – You guessed it, dex alarms.  I guess I over estimated the carbs at dinner bc I am feeling tingly again.  Well, at least dex caught this one…some more glucose, followed by bath, books and bed.  For the toddler…

 

Just when you needed your dexcom most… November 5, 2009

Filed under: Uncategorized — Emilie @ 3:24 am

My husband left for a business trip today.  I worry about being by myself for a few nights, especially since hypoglycemia unawareness is an issue for me.  No problem, though – I have my trusted dexcom to keep me safe!  Or so I thought until I got home from work and checked out my receiver.

dexcom goes kaput

#'s are MIA

 Of course this happens on the day I need you the most!  The thing is spitting out the dreaded ???’s.  And this one has been in for 24 hours, so I really expected more from it and this point.  So I’ve shut it down restarted it, and am awaiting the night time calibration wake up call that is coming my way. 

 I have heard others chatting about the series of bad sensors they’ve gotten from dexcom recently.  I seem to be in a similar pattern.  Mine have been stubborn, usually a few restarts and I can get them to start throwing out accurate #’s, but why the frustration with the first few days?  I am looking forward to exhausting this supply and getting a new 3 month shipment. 

Here’s hoping for a good night’s sleep…

 

NaBloPoMo, taking the plunge… November 2, 2009

Filed under: CGM's,Family matters,insulin pumps,Uncategorized — Emilie @ 2:52 am

With NaBloPoMo starting today, I thought it may be a great way to get back into the daily grind of blogging.  A lot has happened this past year, and a lot has stayed the same.  Over the course of this coming month, I’d like to catch up on what’s going on in my corner of the DOC:

  • Got a new pump!  After a unintended pump vacation (aka – my Minimed Paradigm 722 beeped the fatal button failure error while I was on vacation, hence having to use a pen for the July 5th weekend), I decided to take Animas up on their offer of a Ping for the low price of $900.  I exchanged my Minimed for a $700 credit, hence my relationship with a new (waterproof) pump began.  I’ve been on it since August, and while I do miss the simplicity of the Minimed menu and bolus wizard, I really enjoy being able to stash the pump and bolus from the meter.  Oh, and the most important question – I got a green one! 
  • Got a new CGM!  After kicking my Paradigm 722 to the curb, it was time to evaluate the CGM issue.  I fear living without this technology, and honestly I had been losing my patience with my Minimed CGM.  More often than not, it was spitting out numbers way too far off from my meter.  When I calibrated to try to reconcile the two, it would send out CAL ERROR, followed by BAD SENSOR.  It would be so far off, that it would screech all night saying I am low, and upon checking my meter I never was under 90.  I ended up not wearing it for weeks at a time, and that is not acceptable!  I made the decision to switch to Dexcom, and have been amazed at the accuracy and length of time I can make a sensor last.  The one I am wearing now is on day 10, and still spitting out numbers within 20 points of my meter!  
  • Baby #2…While the decision to try for baby #2 via a gestational carrier was made, the process of making it all happen has proven to not be as easy as I thought it would be.  We discovered some fertility issues on my end, went through a successful cycle in August, and I had 3 eggs that fertilized and made it to blastocyst.  Our amazing carrier went through her portion of the cycle as well, and the first attempt did not work.  We are looking forward to the next round, and I am trying to stay positive and keep myself busy so as not to obsess over things I cannot control.  
  • Speaking of things I cannot control:  Our daughter is now 3 and a half, she is amazing and learning so much each day.  For only being 3, she has started showing a lot of interest in my diabetes.  She will often ask me if I am low if she sees me drinking juice, and will offer to help change my infusion sets for my pump.  I let her do the swabbing of the IV prep wipes.  She is so kind and thoughtful, I really don’t know how we got so lucky.  When I think of all the horrible things that have happened these past three years, she is certainly the one thing that I have in my life that makes all of this worth it.  

   Here’s to this coming month, good things to come, and catching up…

 

Attempting to get back on the wagon… June 10, 2008

Filed under: Uncategorized — Emilie @ 1:51 am

The minilink sensor is in, I have been checking more, catching highs before they become too high.  That said, my numbers still suck.  I spent most of the day trying to bring down a persistent high, only to be foiled by a bad low before dinner.  Now, of course, my CGM graph is escalating up towards the buzzing range.  Right when it is time to go to sleep, of course.

In better news, I did give in and up my basal rates.  It just didn’t make sense that I’ve been high for two days straight.  No amount of bolus brings it down.  Why do I seem to go in these cycles?  I guarantee a month from now, I’ll battle some lows nonstop, then go down on my basals, only to repeat things full circle. 

I’m just not one of those diabetics that stays on track.  It is frusstrating, but I am dedicated to working on it.  I had such great control while pregnant, my A1c’s in the 5’s.  I just need to find the motivation to do it again. 

 

Diabetes Vacation… June 7, 2008

Filed under: Uncategorized — Emilie @ 2:28 am
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I have been on a diabetes vacation the past few days.  Only testing 2 or 3 times a day, persistent highs that won’t come down, and my minilink cgm is getting lonely sitting on my nightstand.  I need to wake up tomorrow, put that darned sensor in, and get back on track. 

I know I can do better.  Why don’t I?  I think it’s easier not to test sometimes when I know I am high.  Sometimes it’s just easier not to see the bad number show up on the meter  If I don’t test, it’s not there.  And if I don’t put in that sensor, I don’t have to hear the alarms confirming I am not doing a good job.   

But it is there.  I wake up high, and I feel like I haven’t slept.  I have a bad mood swing, and I know it’s because my numbers could be better.  I need to get back on the band waggon.

Ok, I am putting a sensor intomorrow morning.  My vacation is over. 

 

Is anyone out there? June 3, 2008

Filed under: Uncategorized — Emilie @ 1:43 am
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Hello blogosphere.  I need help, I’m looking for an outlet for the past few years.  I have been going through complications from being pregnant, being diabetic for 25 years, or who knows what really caused it all – the moon and the stars aligning the wrong way?  It’s hard to think about. 

And it is so hard to think about how long this has been going on for.  Why is it still happening?  I keep asking what I did to deserve it, and there are no answers. 

I have a beautiful baby girl, and it isn’t enough.  I am making a huge effort to meet other Type 1’s, and create some more support in my life, but everyone seems to be faring better than me.  They get through their pregnancies, maybe have a little laser, and then go one to recover and have SECOND babies.  I am not going to be able to do that.  What did I do to deserve this?  

I am having a hard time getting starting here.  There are 25 years of pent up frustration, trial and error, and now eye complications that are clouding things over.  Maybe if I continue here, I can try to sort it all out. 

Sorry this is so lame, I am not sure how to verbalize it all.  I was hoping if I get started, and keep working on it, it’ll get easier  Maybe this is why I am so upset?